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How U=U is changing the perception of HIV: the story of movement founder Bruce Richman

The Undetectable=Untransmittable (U=U) HIV prevention movement is known worldwide. Its initiator, Bruce Richman, shared reflections on the experience of the 1980s and 1990s, centred on his sexuality against the backdrop of the global HIV/AIDS crisis. VirusOff shares key points from the article.

Richman, a global health advocate and founder of the Prevention Access Campaign (PAC), embarked on a mission to build a scientific consensus regarding the U=U movement. The core message asserts that individuals living with HIV, who are on antiretroviral therapy and maintain an undetectable viral load, cannot sexually transmit the virus.

In his formative years, Richman witnessed the devastating impact of HIV/AIDS on healthy young men, an experience that profoundly influenced his dedication to HIV prevention. His diverse career, including running a lifestyle magazine, obtaining a master’s in education from Harvard University, and initiating a youth violence prevention program, equipped him with the skills to advocate for U=U.

The turning point came in 2003 when Richman learned of his own HIV diagnosis, prompting him to establish the Inspired Philanthropy Group. Overcoming “self-stigma” and “fear of transmission,” Richman’s hope was renewed in 2012 when he discovered that his undetectable viral load made HIV transmission impossible.

To consolidate the evidence supporting U=U, Richman mobilized scientists and activists to form a PAC in 2014. The movement gained momentum with the release of a statement in 2016, coining the phrase “U=U.” Richman faced challenges from entrenched fears but persisted, eventually garnering support from infectious diseases experts, health agencies, and advocacy organizations worldwide.

The impact of the U=U movement is evident today, with over 1,000 multi-sector partners in numerous countries actively participating. Richman emphasizes that neglecting U=U is not just a violation of human rights and medical ethics but also a missed opportunity to reduce stigma and enhance HIV treatment and prevention.

International entities, such as PEPFAR and the Global Fund, now mandate U=U education in core programs, and the UN adopted U=U in the 2021 Political Declaration on HIV/AIDS. Richman collaborates with the WHO on policy initiatives, including a recent policy brief released at IAS 2023.

His current collaboration with the US CDC focuses on an implementation and scale-up guide for U=U. Richman believes that while the science is universal, adapting the message to local contexts and overcoming social, structural, and legal barriers is crucial for effective education and implementation.

Undeterred, Richman continues his campaign, aiming to establish U=U globally and ensure its reach across all demographics, including women and young people disproportionately affected by HIV. He asserts that ending the HIV epidemic requires intensified efforts to support those not on treatment, helping them achieve an undetectable viral load for better health and reduced transmission.

Alison Rodger, Professor of Infectious Diseases at the Institute for Global Health, University College London, acknowledges the transformative impact of the U=U message. She hails Richman’s leadership, describing U=U as the most influential and life-changing campaign for people living with HIV since the epidemic’s onset, crediting Bruce Richman as the driving force behind this paradigm shift in HIV prevention.